The impact of living with diabetes can be a major challenge to the patient and to their family. Not only can this result in poor adherence to therapy, but lead to reduced well-being and mental health, hospitalisation and restriction in daily living.
Although there are available a number of diabetes-specific measures of the various issues of living with diabetes including the Diabetes Health Profile we here at DHP Research been developing the Diabetes Profile Care Programme 2013 which is now ready for piloting in diabetes clinics and centres etc. to establish its provisional clinical utility and validity.
What is the DHP – Diabetes Profile Care Programme 2013?
The DHP Diabetes Profile Care Programme is a patient completed holistic assessment of the emotional and behavioural needs and priorities in the care and management of people with either Type 1 or Type 2 diabetes and to trigger specialist and other assessments that my be required to improve the mental health and general well-being of the individual. It consists of 7 sections comprising:
- Personal information – e.g. age sex, diabetes type, duration, diagnosis etc.
- Medical history – e.g. diabetes related health problems, non-diabetes health problems, ability to control diabetes, symptom severity of low blood sugar levels etc.
- Mental health and well-being – e.g. general health, inability to pursue daily activities due to diabetes, general and diabetes-related depression etc.
- Standardised 18-item screening instrument (Diabetes Health Profile) to identify diabetes-specific problems. Developed to provide three separate domain scores for:
- Psychological distress
- Barriers to activity
- Disinhibited eating
Information to support appropriate service response
In addition to the above the assessment includes obtaining additional information in relation to the management of the diabetes and a summary of the patient’s identified needs and priorities in the order of their importance to the patient and priority for action and finally, a record of any immediate actions and needs required.
How does it work?
The assessment can be carried out in a variety of settings including the clinic and patient’s home etc. Normally the assessment is carried out by the patient but, the patient can also be helped by a a diabetes nurse specialist, other health care professionals or social worker when this is considered appropriate.
We are now developing a basic guidance protocol to assist health care professionals who who like to trial the programme with at least six of their patients as well as provide user feed back on the assessment instrument. The data from these pilots will inform the next phase of development of the Diabetes Profile Care Programme 2013 assessment instrument.
If you are interested in participating in the pilot study please provide the following details.